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UBC Innovation Theater: Standardizing and Enhancing Registry Data to Improve Evidence Generation
Session Chair(s)
UBC
United States
UBC will show the value of standardizing diverse registry data into a common structure to assemble real-world evidence to complement ad hoc observational research. This HIPAA-compliant ‘universal-registry’ approach efficiently improves evidence generation to enable better insight into disease natural history and treatment patterns, particularly for rare diseases. Data linkage through HealthVerity’s tokenization process to enhance registry data with other healthcare information will be included.
Speaker(s)
Annette Stemhagen, DrPH, PhD, FISPE
UBC, United States
Chief Science Officer
Irene Cosmatos, MS
UBC, United States
Senior Director, Epidemiology & Real-World Evidence
Andrew Kress
HealthVerity, Inc., United States
Chief Executive Officer
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