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S27 : Discussion with Patients for Development of Rare Diseases ~For Improve Drug Loss in Japan~
Session Chair(s)
Harumasa Nakamura, MD, PhD
Director of Department of Clinical Research Support,
National Center of Neurology and Psychiatry, Japan
Speaker(s)
Is the Patient’s Wish to Live Shared with You?
Tomoaki Shinohara
Parent of a Patient with Mitochondrial Disease, Japan
Developing a New Pipeline to Overcome the Drug Lag of Amyotrophic Lateral Sclerosis
Osamu Kano
Toho University Faculty of Medicine, Japan
Professor, Department of Neurology
Aiming to Solve Drug Loss - Challenges of Aculys Pharma-
Shinichi Nishiuma, MD
Jazz pharmaceuticals Japan, Japan
Senior medical director
MHLW's Action to Enhance Access to Orphan Drugs
Yuji Matsukura
Ministry of Health, Labour and Welfare (MHLW), Japan
Deputy director, Pharmaceutical evaluation division,
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