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Clinical Care vs Research: Walking the Ethical Tightrope Between Advocacy and Coercion
Session Chair(s)
Karla Childers, MS
Head, Bioethics-Based Science and Technology Policy
Johnson & Johnson, United States
This session will delve into the historical and ethical context for distinguishing between clinical care and research and how the blurring poses a risk for engagement with patients. Experts in ethics and health literacy will discuss potential pitfall
Learning Objective : Understand the ethical and historical context for distinguishing between clinical care and research; Describe the regulatory and ethical challenges that are exposed when sponsors and investigators push patients to clinical research; Understand how language and health literacy have the potential to impact an individual’s decision to participate in research.
Speaker(s)
Bioethics perspective
Lindsay McNair, MD, MPH, MS
Equipoise Consulting, United States
Principal Consultant
Patient and health literacy perspective
Catina O'Leary, PhD
Health Literacy Media, United States
President and Chief Executive Officer
IRB perspective
David Borasky, MPH
WCG IRB, United States
Vice President, IRB Compliance
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