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Why Patient/Site Collaboration is a Must Have to Ensure Accessibility to Digital Health Technologies and Development of Patient Relevant Clinical Endpoints
Session Chair(s)
Stacy Hurt, MBA, MHA
Chief Patient Officer
Parexel , United States
Multiple stakeholders, including patients, will demonstrate how patient/site collaboration enhances the simultaneous digital health technologies (DHT)/patient journey to produce potential improvements/efficiencies in patient experience, data capture/quality, equitable access, and site/participant burden.
Learning Objective : Describe the value of patient involvement to improve site engagement and user experience in application of DHTs in clinical research; Discuss key issues with accessibility of patient-reported outcome measurements; Explore how to incorporate patient-defined measurements into potential clinical endpoint development to better align with patient experience.
Speaker(s)
Patient Involvement to Improve Use of eCOA in Clinical Trials
Stacy Hurt, MBA, MHA
Parexel , United States
Chief Patient Officer
Lets Make Sure Accessibility is Considered in ePRO Best Practices: Are We Risking Our Data?
Florence Mowlem, PhD, MSc
Umotif, United Kingdom
Chief Scientific Officer
Patient-Defined Flare Measurement Development in Conditions with Known Flares
Nell Meosky Luo
Folia Health, United States
Chief Executive Officer
Speaker
Alicia Staley, MBA, MS
Medidata, a Dassault Systèmes Company, United States
Chief Patient Officer
Speaker
Brian Hunter, MA
CNS Healthcare, United States
Vice President of Contracts and Trial Management
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